Paediatric Diabetes
Sources of information/links
Social media has pros and cons. It can be a useful source of support and information, but please be aware that every individuals experience is different and advice is not always based on evidence or professional recommendation. We ask that you respect people’s privacy and do not mention anyone’s name, patient or professional, on social media.
No question is silly, just remember some of the answers are!
We would like to encourage you to engage with the Families with Diabetes National Network (FWDNN). This organisation runs in parallel to the South West Diabetes Network and offers you a chance to get involved with the paediatric diabetes care that your family receives and to gain mutual support from other parents/patients in the South West Region.
The Paediatric Diabetes Network has a website with a South West section:
https://www.facebook.com/groups/southwestnetwork/
Local parent support group: Diabetes in Children Mendip Support Group
Contact Emma 0791 3284132 or Annabel 0783 4772076
Facebook: Diabetes in Children - Mendip Support Group
Recommended websites, publications and apps:
External links:
- www.diabetes.org.uk
Care Events: Diabetes UK offer weekend and week-long opportunities for children to have fun, make friends and learn more about their diabetes
https://www.diabetes.org.uk/How_we_help/Care-events/ - www.jdrf.org.uk
Change4Life recipes app & web-based: Change4lifeerecipes (carbohydrate counted when you click on the green ‘nutritional information’) - https://www.nhs.uk/change4life/recipes
BBC good food guide - lots of meal ideas, many are carbohydrate counted - https://www.bbcgoodfood.com
DIGIBETE - Frances cooking shows you how to make simple meals and how to carb count them
- https://www.digibete.org/frances-kitchen/
British Nutrition Foundation has a new calculator allowing you to calculate the nutritional value from recipes. - http://explorefood.foodafactoflife.org.uk/Calculator/Recipe
Diabetes Companion by mySugr app
There are many books available about diabetes in children, please note that many are written by American authors and management of diabetes in children differs in America to the UK.
Type 1 Diabetes in children, adolescents and young adults. How to become an expert on your own diabetes (2015)
Sixth edition
By Dr Ragnar Hanas
Publisher: Class Publishing, London
Diabetes Through the Looking Glass – Seeing diabetes from your child’s perspective (2009)
By Dr Rachel Besser
Publisher: Class Publishing
Carbs & Cals: Carb and Calorie Counter (also available as an app)
By Chris Cheyette & Yello Balolia
Publisher: Chello Publishing Limited
Things to note when reading anything about diabetes:
- Ensure it is about Type 1 Diabetes not Type 2
- That it is about children with diabetes not adults
- That it is up to date
- That it is written by someone with good knowledge of diabetes