What we offer

Our work falls into four main categories:

• Diagnosis of TSC and second opinions
• Management of TSC, including ensuring regular screening for the complications of TSC
• Genetic counselling, with support, information and advice about this genetic condition
• Advice and consultation to local health care services

You may be referred to the TSC clinic because:

• It is thought you may have TSC
• You have had a recent diagnosis of TSC we can provide further information and support about your condition and help you to manage it
• A close family member has TSC and you want to be checked to see whether you also have TSC
• You have TSC and want further support in managing your condition and/or want to investigate treatment options

At your first appointment we will:

• Ask you what you expect from your appointment and any questions you may have
• Ask you about your medical history, including your medications, doses and any tests and scans you may have had - please bring any relevant clinic letters with you
• Carry out a detailed physical examination to look for any outward signs of TSC you may have
• Discuss and agree with you a plan for further follow up

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